First, for those of you that don't have facebook, an update on Abby. Her white blood count went down instead of up last week, so on Thursday we started a round of neupogen injections, one each day for 3 days. It's supposed to increase her white blood count and work extremely fast, so we went this morning to get labs done and to see if it's doing it's job. We should get the results later today. The downside to the med is that it makes Abby ache down in her bones. She's pretty sore in her back and her legs, and her head isn't feeling the greatest either. She has one more injection today, then if it's working, her blood count will be up and she'll be off house arrest. So we are back to "trying" to put off the worry again. I've been trying, without having much success, not to worry for about 2 weeks now. I can't help it, I worry. It just seems like things were going so well, then BAM, things aren't so great again. Hopefully we'll have some answers today and Abby can start feeling good again and go back to school and soccer and cardiac rehab and everything that a 12-year-old girl needs to be doing!!
Some good news we got this week is that Desert Hills Middle School, has decided to sponsors Abby's wish for Make-a-Wish. Today they are doing a walk-a-thon to raise funds and Monday night is Red Robin night!!! Everyone go to Red Robin on Monday, and 10% of the price of your meal will go to Make-a-Wish for Abby! Hopefully we will be able to be there, depending on Abby's labs today, and we would love to see you!!! Thank you Desert Hills and thank you everyone in St. George for supporting us in this!! I think Abby is pretty deserving of this wish, she's been through a lot this past 8 months.
We had so much fun with the last blog post, that we deciced to do more!!! Any of you that really know us, probably know that it's not hard to come up with funny things that happen when we're around, we just like to have fun. Hopefully, you'll think these things are as funny as we do!
-The day Nick Rimando, the Real goalie, walked into Abby's room. Abby thought it was awesome he was there, but Britt was just in awe. Britt's jaw dropped to the floor and she just sat there staring.....and staring. The whole time he was talking to us, Britt just stood there unable to speak. Finally, she barely whispered, "Ummm, do you think I could get my picture taken with you?" It was great!
-One morning, really early like 6:00 am, a few days after Abby's transplant when she was still in the cardiac intensive care, I was trying to organize her room. We had cards and games and treats and clothes and it was all just a big mess, so I would always organize (it was a stress reliever!) I was putting the games back in the cupboard and I dropped the Farkle party game. No big deal right?? Well, Farkle Party has 40 dice in it, and they dropped and scattered across the floor of the ICU.....everywhere!! And it was completely silent in the entire CICU. I burst out laughing while I was crawling around on my hands and knees trying to find all of the dice. I thought I was getting dirty looks from all of the nurses, but they were probably trying not to laugh. Abby opened one eye, rolled it, and said, "Good one mom!" then she went back to sleep. Embarrassing!!
-Britt wants to become a nurse some day, and she was always working hard to be Abby's nurse. When we first got to PCMC, and Abby had no shortterm memory, for some reason she liked to take her slippers off and then ask Britt to put them back on. Then she'd forget and ask all over again. After Britt would put them back on, Abby would always say, "Britt, you're a bad nurse!!!" Then she'd do it all over again. We couldn't help but to laugh.
-The day Brock and Britt came running into Abby's hospital room yelling, "We just saw Criss Angel, just saw Criss Angel!" I asked them if they got his autograph and a picture.... that's when they said that they "thought" it was him anyway. They still believe it was him, I still believe that they're full of it!
-The day I went to go to the bathroom in Abby's room, and it didn't sound like it usually does. It took me a minute to realize that I had peed in the hat! (the thing they put in the toilet to collect Abby's urine to keep track of how much she was going!) The worst part about it was that then I had to dump it out, and anyone that knows me knows that things like that make me gag!!!
-When Abby had restless legs in our Sugarhouse house, and she would get up and wander around in the night. Some mornings I wouldn't be able to find her. Luckily, I had her oxygen tubing to help me! One time I even found her wrapped in a blanket under the hide-a-bed!! It would always scare the crap out of me when she wasn't where she was supposed to be.
-The things we became obsessed with in order to take our minds off of everything that was happening with Abby. Brock started coloring!! Wow, to see my 15-year-old son, laying on the floor with markers, coloring pictures of animals from a coloring book and then hanging them on the wall, it's hard to describe. Britt took up making latch-hook rugs. She would do it for hours and hours. You probably didn't even know they still make those, I remember making one when I was in 7th grade!! I'm glad she got over that obsession, we didn't know what to do with her "creations!" I just wanted to watch the show Hoarders. It was on Netflix, and I think while we were in Salt Lake I watched about 40 episodes. Maybe because it let me know that at least I had control over some things, like keeping my house clean and organized. Abby hated watching it, but I did it anyway.
-The time Britt came to clinic with us and while we were waiting, she ripped out all of the pictures in the magazines of the hot guys and used hospital tape to tape them to the walls. You should have seen the transplant team when they walked into our room! I will never forget it. When they were done, they told Britt she could even take all of the pictures home with her, I can't believe they didn't want to keep them hanging in there. They've gotta love when we come to clinic!
-My hot doctor "boyfriend". No, all of you PCMC peeps, I'm not naming any names, but I would always tell the kids that this one certain doc was my boyfriend. He would always make it a point to come by our room and see me/Abby, and even on clinic days he still always mananges to see us at least twice. Is he married? Ya, probably. Is he really my boyfriend? No, probably not. Can I just pretend? Most definitely!!! I must admit that he did come looking for me the day after Abby's transplant, and I'm not going to say what he did when he found me :) ( I am single for those of that didn't know!)
-The day Abby lost it and freaked out on all of us, because the Sugarhouse "blue" house wasn't pefectly clean and organized enough for her. Wow, she was on a rampage. Brock's coloring was on the floor, Britt had yard strewn all over the house, their were games everywhere, and it was just not clean and Abby wanted it to be!!! I'll admit it, we did step it up and cleaned everything just so Abby would be happy. She's a little spoiled now, it's hard to say no to her and we all like to make her happy as much as possible.
There are so many more, but this post is already too long, so someday I'll have to write a part 3. Right now I am just trying to stay busy, so I don't worry too much about the phone call that should be coming soon from the transplant team. It's was good to write this today because it made me laugh, and if I wasn't laughing, I'd probably be crying. This week has been hard and when I asked the transplant coordinator yesterday if I should be worrying right now about what's going on, she didn't give me the definite "NO!" I was hoping for. She sounded a little worried, and told me to try not to worry too much yet. Good advice, but impossible to do. I'm just praying for the results we're looking for!!! We are hanging there, and no matter what we hear, we will be okay and I have confidence that we are always ready to deal with whatever is coming next.