Clinic last Monday went well, we were lucky enough to have Brock with us because we have spring break all week. Everything looked good at clinic except for her white blood count, it was only 1.9 and they like it to be above 4.5. She was just borderline where they would start her on some meds to help bring it up again, but we just decided to test again on Thursday and see what it looks like then. Abby has been real tired and mellow all week, sleeping a ton, and not really wanting to do anything. I'm just hoping that everything is okay. The rest of this week has been awesome, no school, lots of sun, and time to clean some closets out and relax a little too! It's been nice, it's just giving us a glimpse of how this summer is going to be, and I can't wait! Britt is on a school trip to Europe! She got to go to England, France, and Italy. So far, she's having a blast, but says she hasn't really slept yet and it's been about 5 days. They go on daily tours and get to see everything. I'm a little jealous, the last time I was in Europe was when I was 2 years old and I don't remember anything. But, I'm glad for Britt, it's just what she needed after this whirlwind of a year/2 years she's had!
My last post was about some rough memories that I had been remembering, this post is going to be about some funny things that happened while we were in Salt Lake.......it wasn't always hard, we had tons of good times too! I hope these memories are as funny for you as they were for us as we were remembering them.
-Brock losing a game of Uno and for his consequence having to have a conversation in Spanish with Spiderman in PCMC. He looked hilarious! "Como es stas, Spidey!"
-The first time I was given a pager, after Abby's 1st cath. Brittany and I were both there and heard instructions, but when the pager went off we both freaked out and couldn't remember where to go or what to do! We lost Abby for a few minutes! What a couple of spazzes!
-My friend Jacquie Tui making Abby's whale pillow pet and putting a horn on it to make it into a narwahl! Abby was still a little confused at this time and had this funny obsession with narwahls! Then she kept saying, "that's a really stupid narwahl!"
-Brock and Britt making their hospital dolls. Britt immediately grabbed hers and put a ACL repair scar on the knee. I think Brock made the first hospital doll with chest and leg hair. They thought they were so funny and could not be serious. I think the child life specialist was ready to quit after that day!
-Britt and Abby saying that they were going to watch the Justin Beiber movie every day until Abby got her new heart......and they did, I think they were just trying to make me crazy!
-Abby's general response to every question the doctors and nurses asked her, "I don't know.....I don't care!!! we would all mouth it every time because we knew that was what she was going to say.
-Brock's obsession with the Old Maid card game while we were there. Even the old lady in the gift shop started laughing when I went to buy the cards. I especially loved the "doctor" card that looked just like Dr. Kaza, so Britt pulled it out of the deck and hung it on the wall with Dr. Kaza's name on it. I'm not sure if he ever saw it!
Brock and Britt always hitting on the nurses. They both had their faves and were psyched when they were working when they were spending the day at PCMC. The best was when Brock really had the hots for this one nurse, I won't say her name, and so we set them up to go on a date to the slushy room together!! He thought it was awesome, but then we found out she was like 26 years old, ooops! The one night Britt stayed over with Abby, they told me her fave male nurse and tech spent most of the night chilling with them and sneaking them cheetos! I'm glad we still keep in touch and visit some of these awesome nurses!
-Abby kicking me out of her room and freaking out at me because the psychiatric team wanted to talk to her, it wasnt' he even my fault! She was so mad, but the transplant team insisted on it. She was so mad, but right when they walked into her room, she acted like a little angel and answered every question with the exact answers they wanted to hear. I'm pretty sure she played them just perfectly.
-The sign Britt put on Abby's door telling the doctors that if they wanted to listen to Abby's heart, they had to pay a dollar. This was when it seemed like everyone in the hospital wanted to listen to Abby heartbeat because it was so messed up. They all laughed at the sign, but nobody ever paid!!
-The day I accidentally turned Abby's oxygen all the way to up instead of off, I think it blew the cannula right off of her face!
-All of the games of Monopoly! we probably played over 100 games and Abby won about 95% of them. She actually started posting her wins on the white board along with how much money she ended up with. It was annoying because I was always the loser.
-How the transplant team always loved coming in our room, because they said they always left with a smile on their face. We made them laugh, and they loved watching my kids together.
-On the 4th of July when Abby and I went out to watch fireworks. It took forever to get her IV pole ready, and her unhooked from the wall. When we finally got outside, we watched one firework go off and her IV ran out and wouldn't stop beeping and bugging everyone on the patio, so we had to go inside. We missed all of the fireworks but laughed about it!
-The ninja colony we made out of all of the stretchy guys that come with the hospital food, I bet we are the only patients that have ever put ninja masks on all of the stretchy guys and set them up having a ninja competition.
-Abby the first few nights we were in the ICU and she had no short term memory, looking at the sticker on the ceiling and asking over and over again, "is it a dog or an octopus?" Some day, I want to take her back in there and let her see it for herself! It was clearly a dog, I still don't know what she was talking about.
But the all-time funniest thing (stupidest thing if you ask my kids) that happened was the night we got "the call." It was 3:30 in the morning. I answered, they said, "we have a heart, start getting ready and we'll call you back in a half hour." I woke up the kids and started getting our stuff together. Then I didn't know for sure if it was real or if I had just had a dream. I decided it was just a dream, so my kids made me go through my recent calls on the phone, sure enough, we had a call at 3:30 am. We got in the car and started driving to the hospital. About half way there I realized that they hadn't called me back yet and it had already been a half hour, so I pulled over and looked at the phone again and saw that the number that had called wasn't from the hospital, I didn't recognize it. I looked at the kids and said in complete seriousness, "Oh no, it was just a prank call! Somebody was just pranking us!! Some dork just wanted us to think the heart was here! it's not real, it's just a prank caller." Brock, Britt, and Abby all just burst out laughing, but at that point I was completely sure that that's what happened. I didn't think it was funny at all. Thank goodness Emily called us back just at that time, so I knew it was real and we finished driving to the hospital. Now I look back on it, I can see how funny it was, I think that was when my kids realized how much I was really losing it :)
Was what we went through the past 8 months hard? YES!!! There are very few things I can think of that could have been harder; But, I think we did an excellent job of making the most of it and trying to have some fun while we were going through it. We made it bearable and created many memories, fun-laughing-happy memories that we'll never forget. I'm just grateful that my kids are the type of people that can do this, because I think this is one of the most important skills to have! I'm just grateful for my kids.....they are the best, I couldn't ask for better kids, they are my everything.