Monday is clinic day again, I'm just a little nervous for this one because it's the first time that Abby has been off of prednisone since her transplant, but I think things are going to be okay. She been on and off lately, sometimes feeling good, sometimes not so good. It was kind of weird a couple of days ago though. After going about 6 weeks without any swelling in her ankles and feet, all of a sudden, after we went and watched play basketball, her ankles and feet were huge again! The next morning, yesterday, she could barely walk because they hurt so bad and were still swollen. But, by the afternoon, they were a little better....she even went to soccer practice! She is so tough, she said they hurt, but she wanted to play anyway so she just toughed it out. She really wants to play in the tournament next week in Mesquite, but we'll see how things go before we make that final decision.
I came across a blog post from another heart mom that I thought was very well written and explains a little bit why I am how I am, so I'm linking the post below, I hope you take the time to read it. Her daughter's name just happens to be Abby too!
Thanks Nicole for sharing, you did an excellent job of explaining!
www.abbysperfectbrokenheart.net
Think about us Monday at clinic! I'm thinking it's just going to be a routine, easy clinic day. In and out with only good news! I'll post again next week.
Will be praying everything goes smoothe Monday...and NO more swelling!
ReplyDeleteI've been following your daughter's progress since I heard of her story through my sister who teaches at her school. My friend's 6 month old daughter is scheduled for open heart surgery next Wednesday. I don't live close enough to be there, but want to send a care package for her. What kinds of things would a mama amd daddy appreciate having at the hospital while staying with their child?
ReplyDeleteyep. That linked post pretty much sums it up. Amazingly exhausting. Good luck Monday!
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