Tuesday, February 5, 2013

Brock's birthday and bad news again!!!

Tomorrow, February 6th is Brock's 17th birthday.  17, wow I can't believe it.  For those of you that have never had the chance to meet Brock, I wish you could.  He's one of the greatest kids ever!  Everyone that knows Brock, loves him, he's so personable (except on the football field anyway!)  I love it during school when I get a text from Brock, because I just never know what it will be, but it usually makes me laugh.  Sometimes it's just a "funny" joke.   Usually, it starts with "Guess what?"  and then he won't tell me until I text back, "What?"  Or sometimes he just sends me pictures like this one:

How can I not laugh when I look at my phone during a break and see Honey Boo Boo's sorry mom looking at me?   Brock loves to tease his sisters and me, but he's really just a sincere, nice kid.  He knows how to work hard and be dedicated, he's played sports since he was 4 years old.  I can't even begin to write about how many all-star teams and championship teams he's been on.  He just loves to be on the field competing.  Another thing about Brock is that he's got a natural ability to lead, people always tend to follow Brock and they look up to him and watch for his example.  I'm proud to be Brock's mom, I know he can do whatever he wants to do in life....and he was so cute when he was a little kid that I just have to add some pictures.


This was Brock's first year playing football, he's 8-years-old.

Happy Birthday Brock!  For his birthday he wanted his own football helmet with a sweet face mask, and his own personalized cleats.  He's going to be so ready for football next year, he already can't wait.  His ankle is healing perfectly.  Physical therapy is really helping, in fact, he feels like he's ready to run on it again, but that's not allowed for a couple of months still.  Luckily, he can be doing lots of other things to stay fit and get stronger.   He should be 100% by the first football camp of the season!

Britt's tonsils have almost completely healed too.  She hasn't had a sore throat for almost 6 weeks, which is probably a record!  I have to laugh at Britt because she's such a good student, she works hard and always does well; But, for the past few weeks she's been constantly complaining about how horribly hard her chemistry class is this semester and how she just doesn't get it, and that it's too hard, and that she needs a tutor, etc. etc.  Then she takes her first test and gets a 91% on it!  Whatever Britt, I know you'll always do well.  I can 't wait until she's in nursing school, she's going to love it.  

Abby survived her Neupogen injections.  It was 5 rough days, they just make her so achy.  It was hard for her to be on house arrest and not go anywhere for that long!  But, last Wednesday we got the word from the transplant team that they did their job and her blood counts were almost right where they needed to be......until yesterday anyway.  Abby had labs drawn again yesterday to see if they were maintaining, and unfortunately, her blood count was right back where it was at clinic at couple of weeks ago.  Not good.  Thankfully, they don't want to do more shots yet.  We're going to try to make a few changes in her meds to see if this will help.  Personally, I don't feel like this is the problem, I think that there's something more going on, but what do I know??  The other problem is that the shots gave Abby a rash on her face, we're still trying to figure out what to do to make that go away!  Abby goes back to clinic on Monday and they'll draw labs again then.  If they still haven't come up, I'm not sure what the next step will be.  For now, Abby is on house arrest again.  It's discouraging for her, she was just trying to get back into school and going to the gym again.  

Britt giving Abby her shot.  She had to fill in when my dad and sister were gone.  There was no way that I was going to do it, I have to draw the line somewhere!

Cute Abby, her color isn't looking the best, but she's been feeling okay!

This is my sister giving Abby her shot when my dad was gone.  Thanks Meri!

I  absolutely hate leaving her everyday when I have to go to work.  Sometimes she spends the days with my parents, which is good, but she wants to be at school with her friends. It makes me sad.   I guess we'll have anther stressful week of waiting.  I was talking to the transplant team a couple of weeks ago about how after a transplant, most families eventually begin to somewhat "normalize."  Things are never completely back to normal, but they start to get back to some kind of a routine.  But, they were saying that because of all of the crap Abby has gone through, we still haven't been able to get to that point.  I think that's true.  It seems like every time we get to the point of doing our regular things, something happens.  I have to admit, it's not easy.  Not for me, Brittany or Brock, or especially Abby.  It really starts wearing on you.  I seem to wake up in the morning as tired as I am when I go to bed.  I've been trying to go to the gym at 5:00 most mornings before school, but it's hard.  Some mornings when my alarm goes off, I really question whether I'll be able to make it through the whole school day if I get up that early.  It seems like there's always something to worry about, we seem to trade one set of problems for another.  I know everyone told us that after the first year things would get easier, but maybe they meant to say after the first year and half!  That's what I'm counting on anyway!  If you have any new ideas to keep Abby busy for the next few days, let me know, I'm sure she's already bored.

1 comment:

  1. I know everyone is different, but my white count dropped to 2.0 a couple years ago. The docs kept drawing my blood each week and it kept going down. I think it hit .7 at the lowest. I had to cancel my trip to Hawaii. I was bummed. I had a bone marrow biopsy to see if it was low in the marrow too. The docs eventually took me completely off Cellcept for about 3 weeks. That did it. The white count came up and has been fine since. I'm not sure if the cellcept just got too toxic in my system or what. Hope you find an answer soon and something that is easily fixed. Well wishes to Abby and your family.