We just survived another clinic Monday!! It's always such a relief when we get in the car and we're on our way back to St. George. It was actually fun today, because we got to have Britt with us and we passed out Team Doman shirts for Christmas presents to all of our friends in the blood lab, cardiology clinic, echo lab, and cath lab. I told them all we expect to see them wearing them next time we're there :)
Abby's echo and labs looked good today. But, since we had to change her blood pressure medicine back because of the migraines, now she's back to the swelling in her ankles and feet again. It's no fun, sometimes she can't even walk on them, but we will take the swelling over the migraines any day! So, we are increasing her blood pressure meds a little to see if that helps, but then we have to watch her blood pressure because it's been dropping pretty low. We thought today would be the day that she could come down on her steroids a little more, but no luck. Because of the swelling and Abby's lethargy lately, we're going to hold steady for a little longer. They also drew some extra blood to make sure that abby doesn't have virus. She's been a little tired lately, with stomach aches and small headaches, so they want to rule out mono and some other things. I think that everything is great with her heart, and that she doesn't have a virus, but she's just having a hard time coming down off of the prednisone. Abby has a really hard time coming off of any med, her body just doesn't react very well and it makes her feel crappy. I also think that she's just getting tired of not feeling good. She doesn't feel horrible, but she doesn't feel good either and that gets old fast! Poor kid, it seems like if it's not one thing, it's another, and it's been dragging on for a long time. We know that she's lucky to even be where she is today, but we can't wait until she feels great either. They did an EKG to double check things, it looked great, and then they told us to come back on the 29th. That's only 10 days, but with her not feeling the greatest, they want to keep close tabs on her for a while. So, another trip to Salt Lake next week, that's getting a little old too!!
I was thinking about time this past week. My sense of time has been off, way off since May 18th. On January 12th, Abby will have had her new heart for half of a year, 6 months! It seems like it's been a lot longer than 6 months!! A kind of funny thing happened last week too. I realized that we only waited for Abby's heart for a month and a half.......only a month and a half!! It seemed way longer than that!! I counted from May 18th-the day we were life flighted, to July 12th-the day of the transplant, like 20 times, I couldn't and still can't believe that it was less than 2 months! Even though that amount of time seems so long, it also seems like it didn't even happen. It feels like I'm still finishing teaching the school year from last year. It seems like this school year is going on forever, but I've really only been teachiong 6 weeks, but it's because it just seems like I'm still finishing the 2010-2011 year. And whenever I talk about last summer, it's actually the summer before, it's like this summer never happened. It's hard to explain, and it really doesn't make any sense, but I'm hoping some of you that have gone through something like this, understand what I'm talking about. Brittany and Brock are the same way, as far as "time" goes, we're all a little messed up still!! Maybe we'll stay confused until we really have a summer, or maybe the past 6 months of our lives will always be kind of blurry and messed up.
I did get myself the greatest Christmas present, and yes, I did open it too! I had our blog made into a book and I got it in the mail last week....and I love it!! That's one thing that is helping us keep that part of our lives straight. I love going through and reading all of the comments people have left, it's very humbling and inspiring when I see how much support and love we've had the past 6 months. We always feel very blessed when we think about the people that we have in our lives, we know we have the support we need and we can turn to many different places when we need it, this is very comforting. Thank you all for being a part of our story, we couldn't ask for anything more this Christmas!
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